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Showing posts from June 9, 2019

BAD TO THE BONE

I am 13 going on 14 won't you tap my knee. I was diagnosed with neurofibrofucksake type 2 when I was 13 years young. I sat in the consultants office looking at a very business like brain surgeon in a suit. He wanted to check my reflexes I had bones like concrete as a kid seriously they needed a jack hammer to get the pins and screws in when I broke my leg. So I sat on the examination bed and he checked my knees. One tap on my knee and he got a swift kick full force in the nuts! He stood well back when he checked the other knee. He got his own back though, he took my hearing a week later! Be warned never kick a brain surgeon in the gonads!! Alternative name to this story could be Great balls of fire!!

Young Girl

Young Girl Get offa My Ward Before leaving for the hospital, I threw my arms around my mam and said I bib you (I love you) Where to start, where to start? This blog won't be chronological order, not with my memory! but I do think the best place to start is the very beginning. This is both mine and my mothers story. My mam was diagnosed with NF2 and had her surgeries when I was 18months old. Her first brain surgery which left her deaf was 20hours long. Her second surgery wasn't much shorter! She was in hospital for a few months. So there she was really going through it physically, lost hearing, plunger into a world of silence and missing her baby. Hospitals were even more strict ab.out children visiting back in 1985. My dad used to smuggle me in under is coat hidden behind a bunch of flowers. As he walked   along, I would be saying fleurs fleurs! Dad tried to keep my mouth shut, think zip it zip it! People must have thought he had a really strange sounding FART.